Conference
Milano, Italy
PALAZZO PIRELLI , Sala Gonfalone
May 9th, 2019
Big Data,
Electronic Health Records and Health Governance
Regions4PerMed is an H2020 project whose focus is the coordination of regional policies and innovation programmes in Personalised Health and Medicines to accelerate its deployment for citizens and patients. The project has the overarching goal to align strategies and financial instruments, identify key investment areas and release a strategic European agenda in order to reinforce the cooperation between H2020 and ESIF on Personalised health and Medicines aspects, strengthen industrial specialisation areas in Europe, allow Personalised Health to flourish as an Emerging Industry and enable interregional joint investment in the field.
The Project creates an arena for discussion, best practices exchange and policy benchmarking between regional authorities and innovation stakeholders in Personalised Health.
Regions4PerMed will be focusing on five Key thematic areas: medical big data, connected health, health industry, innovation flow in the healthcare and socio economic aspects.
The Conference of the First Key Thematic Area (KA1) explores the theme of Big Data, Electronic health records and health governance and aims to:
- Support the creation of a Data Ecosystem and the data and genomic empowerment for Personalised Medicine and Health in Regions and in Europe;
- Increase the knowledge and realise an assessment of solid models for Big Data in healthcare;
- Use health related Big Data as a strategic investment that could drive industrial competitiveness;
- Analyze and assess implementable models of biobank networks able to support the transition towards health and care data based systems.
Programme
Thursday May 9th, 2019
08:15
Registration
08:45
Marina Gerini (Fondazione Regionale per la Ricerca Biomedica)
Host Greetings
09:00
Gianni D’Errico, Paola Cormio (Toscana Life Sciences Foundation)
Regions4permed: the project, aim of the conference
09:15
Luca Merlino (Lombardy Region)
Personalised Health Governance from the perspective of a Region
09:30 - 11:05
Keynote Session: Setting the scene
Chair: Sergio Abrignani, INGM (National Institute of Molecular Genetics) and University of Milan
09:30
Jana Makedonska (European Commission)
The Digital Transformation of Health and Care and the European 1 Million Genomes Initiative
09:50
Elio Borgonovi (Bocconi University, CERGAS)
The role and value of regions for the healthcare of tomorrow
10:10
Sabrina Montante (National Institute of Health, Italy)
Innovation and Healthcare systems: TO REACH Project
10:30
Discussion
10:45
Coffee break
11:05 - 12:40
SESSION I: Clinical decision support, data sharing, patients engagement
Chair: Nick Guldemond, Erasmus School of Health Policy & Management, PANAXEA
11:05
Jan Korbel (European Molecular Biology Laboratory, Germany)
Data integration and interoperability for enhanced system medicine
11:25
Riccardo Bellazzi (Università degli Studi di Pavia)
Predictive data mining in clinical medicine: current issues and guidelines
11:45
Giovanni Apolone (Istituto Nazionale dei Tumori)
Big data as a driver for clinical Decision Support Systems. The STARGATE INT Proposal
12:05
Antonio Barone (LISPA, Lombardy Informatics)
Regional innovation: the taking care approach
12:25
Discussion
12:40 - 14:30
SESSION II: Research Data management
Chair: Denis Horgan, EAPM
12:40
Jana Makedonska (European Commission)
HRIC – Health Research and Innovation Cloud
13:00
Lisa Licitra (Fondazione IRCCS Istituto Nazionale Tumori)
Pilot project in oncology with big data
13:20
Discussion
13:30
Lunch
14:30 - 16:00
SESSION III: Data and Patients
Chair: Christos Lionis, University of Crete
14:30
Mauro Turrini (University of Nantes)
What can algorithms do? Social issues and occasions of data-driven devices in health care
14:50
Marco Greco (European Patients’ forum)
Does Data Save Lives ? The patient’s perspective
15:10
Martin Sedlmayr (TUD Institute for Medical Informatics and Biometry)
Towards Data Sharing in the German Medical Informatics Initiative
15:30
Discussion
15:45
Coffee Break
16:00-17:30
SESSION IV: Health data management: biobanks and healthcare databases
Chair: Giovanni Apolone, Istituto Nazionale dei Tumori
16:00
Eleni Salamaxani (Genomics England)
Value of genomics data for science and medicine
16:20
Giovanni Corrao (Bicocca University)
Real world data in healthcare
16:40
Mary Wang (Fondazione Telethon)
Network of rare genetic biobanks
17:00
Discussion
17:15
Fondazione Regionale per la Ricerca Biomedica and Toscana Life Sciences Foundation
Final remarks